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Viewing 11-19 of 19 results (listed by best match)

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Solve ME/CFS Initiative

Provides information about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and other neuroimmune diseases such as Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS), Epstein-Barr Virus, Post-Viral Fatigue Syndrome (PVFS), and Long Covid.

Services: Disease/Disability Information, Medical and Health Sciences Research, Nongovernmental Agency Departments

Confidential location

Glendale, CA 91206

(704) 364-0016

Sturge-Weber Foundation

Provides information about Sturge-Weber Syndrome and other birthmark conditions such as port wine stain, and Klippel-Trenaunay Syndrome.

Services: Disease/Disability Information, Event Coordination Volunteer Opportunities, Nongovernmental Agency Departments, Physician Referral Services

6105 S Main St

Ste 200

Aurora, CO 80016

(973) 895-4445

National Fragile X Foundation

Provides information and support for people with Fragile X syndrome, a genetic condition.

Services: Disease/Disability Information, Nongovernmental Agency Departments

1012 14th St NW

Ste 500

Washington, DC 20005

(800) 688-8765

The Marfan Foundation

Provides information and support for people with Marfan syndrome and related connective tissue disorders.

Services: Disease/Disability Information, Health/Disability Related Support Groups, Nongovernmental Agency Departments, Workshops/Symposiums

22 Manhasset Ave

Port Washington, NY 11050

(800) 862-7326

Aplastic Anemia & MDS International Foundation

Provides information to people with blood and bone marrow diseases such as aplastic anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML), Paroxysmal Nocturnal Hemoglobinuria (PNH), and related diseases.

Services: Disease/Disability Information, Nongovernmental Agency Departments, Research Funds, Workshops/Symposiums

4330 East West Hwy

Ste 230

Bethesda, MD 20814

(800) 747-2820

The MAGIC Foundation

Provides information and support for children and adults with disorders, syndromes, and diseases that affect growth, and their families.

Services: Disease/Disability Information, Nongovernmental Agency Departments, Workshops/Symposiums

4200 Cantera Dr

Ste 106

Warrenville, IL 60555

(800) 362-4423

International Foundation for Gastrointestinal Disorders

Provides information and support for children and adults with gastrointestinal disorders, including chronic constipation, Irritable Bowel Syndrome (IBS), Gastro-Esophageal Reflux Disease (GERD), and bowel incontinence.

Services: Disease/Disability Information, Nongovernmental Agency Departments

537 Long Point Rd

Ste 101

Mount Pleasant, SC 29464

(414) 964-1799

Tourette Association of America

Provides information and support for people with Tourette Syndrome, a neurological disorder characterized by uncontrollable motor and vocal tics.

Services: Disease/Disability Information, Medical and Health Sciences Research, Nongovernmental Agency Departments

4240 Bell Blvd

Ste 205

Bayside, NY 11361

(888) 486-8738

Tourette Association of America - Arizona Chapter

Provides information and support groups for people with Tourette Syndrome.

Services: Disease/Disability Information, Health/Disability Related Support Groups

Various locations statewide

Mesa, AZ 85206

Viewing 11-19 of 19 results (listed by best match)

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