Alport Syndrome Foundation, Inc

Eligibility:

No restrictions

Intake Process:

Call or visit website

Description:

Provides information about Alport Syndrome, a rare kidney disease. Includes educational materials on the diagnosis and treatment of the disease. Supports seminars, conferences, workshops, and research including understanding the disease, treatment protocols, and a cure.

Hours:

Mon-Fri 8am-5pm

Program Fees:

None

Languages:

English

Handicap Accessible?

Yes

Wishlist:

Accepts monetary donations.

Volunteer Opportunities:

Volunteers serve on the board of directors and help with fundraising, newsletter writing, website development and maintenance, and outreach efforts.

Address Listings

Physical (Primary)

1608 E Briarwood Terr
Phoenix, AZ 85048-9414

Mailing

PO Box 4130
Scottsdale, AZ 85261-4130

Contacts

Lisa Bonebrake

Primary Contact

Executive Director

lbonebrake@alportsyndrome.org

Phone Numbers

Main

(480) 800-3510

http://www.alportsyndrome.org

Date of Official Change:

February 28, 2020

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