Eligibility:
No restrictions
Intake Process:
Call or visit website
Description:
Provides information about Alport Syndrome, a rare kidney disease. Includes educational materials on the diagnosis and treatment of the disease. Supports seminars, conferences, workshops, and research including understanding the disease, treatment protocols, and a cure.
Hours:
Mon-Fri 8am-5pm
Program Fees:
None
Languages:
English
Handicap Accessible?
Yes
Wishlist:
Accepts monetary donations.
Volunteer Opportunities:
Volunteers serve on the board of directors and help with fundraising, newsletter writing, website development and maintenance, and outreach efforts.
Date of Official Change:
January 1, 2024
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