The Marfan Foundation
Address
22 Manhasset Ave
Port Washington, NY 11050-2023
(800) 862-7326
AKA:
*National Marfan Foundation
Eligibility:
People with Marfan syndrome, Loeys-Dietz syndrome, VEDS, and other genetic aortic and vascular conditions; and their family and friends
Intake Process:
Call or visit website
Description:
Provides information and support for people with Marfan syndrome and related connective tissue disorders. Also provides phone and online support groups. Hosts community walks and events, webinars, regional symposia, and a conference.
Hours:
Mon-Fri 9am-5pm Eastern Time
Program Fees:
None for information; conference fees vary
Languages:
English
Handicap Accessible?
Yes
Address Listings
Mailing
22 Manhasset Ave
Port Washington, NY 11050-2023
Physical (Primary)
22 Manhasset Ave
Port Washington, NY 11050-2023
Contacts
Michael Weamer
Primary Contact
President & CEO
Phone Numbers
Toll-Free: 800-8-MARFAN
(800) 862-7326
Alternate
(516) 883-8712
Date of Official Change:
December 1, 2023
Send profile information to an email address.
Provide your email address to receive information about The Marfan Foundation.
Sent!
Close this fieldSend a condensed resource profile to your phone via text message (SMS).
Select your cell carrier and provide your phone number to receive information about The Marfan Foundation.
Sent!
Close this field