National Organization for Rare Disorders

Address

55 Kenosia Ave
Danbury, CT 06810-7326

(800) 999-6673

http://www.rarediseases.org

AKA:

NORD

Eligibility:

No restrictions

Intake Process:

Call, email, visit website, or write

Description:

Provides information and publishes reports related to rare (orphan) diseases. Includes a description, the symptoms, causes, and standard and investigational treatments. Also provides information about clinical and research studies. Website provides links to other resources.

Hours:

Mon-Thu 8:30am-7pm, Fri 8:30am-6pm Eastern Time

Program Fees:

None for information; annual membership dues

Languages:

English, Spanish

Handicap Accessible?

Yes

Address Listings

Mailing

55 Kenosia Ave
Danbury, CT 06810-7326

Physical (Primary)

55 Kenosia Ave
Danbury, CT 06810-7326

Contacts

Peter Saltonstall

Primary Contact

President & CEO

orphan@rarediseases.org

Alicia Lawrence

Patient Services Case Manager

informationservices@rarediseases.org

Phone Numbers

Toll-Free: 800-999-NORD

(800) 999-6673

Toll-Free Spanish

(844) 259-7178

http://www.rarediseases.org

Date of Official Change:

December 1, 2023

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