Batten Disease Support & Research Association

Eligibility:

No restrictions

Intake Process:

Call or visit website

Description:

Provides information about Batten disease, a lysosomal storage disorder. Website provides links to additional resources. Funds treatment research.

Hours:

Mon-Fri 9am-5pm Eastern Time

Program Fees:

None

Languages:

English; Spanish by arrangement

Handicap Accessible?

Yes

Volunteer Opportunities:

Volunteers assist with translating written material into other languages and advocate with state and local officials.

Address Listings

Physical (Primary)

2780 Airport Dr
Ste 342
Columbus, OH 43219-2292

Mailing

2780 Airport Dr
Ste 342
Columbus, OH 43219-2292

Contacts

Tauna Batiste

Primary Contact

Executive Director

info@bdsra.org

Noreen Murphy

Patient & Family Education Coordinator

nmurphy@bdsra.org

Phone Numbers

Toll Free

(800) 448-4570

Alternate

(614) 768-1159

Toll Free Fax

(866) 648-8718

http://www.bdsra.org

Date of Official Change:

January 15, 2020

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