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Note: You may only specificy one type of location (zipcode OR city OR county OR state), not a combination.

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National Down Syndrome Congress

Provides information about Down syndrome to parents and professionals.

Services: Disease/Disability Information, Nongovernmental Agency Departments, Self Advocacy Support, Workshops/Symposiums

30 Mansell Ct

Ste 108

Roswell, GA 30076

(800) 232-6372

National Down Syndrome Society

Provides information and support for people with Down syndrome, a genetic condition.

Services: Disease/Disability Information, Nongovernmental Agency Departments

1155 15th St NW

Ste 540

Washington, DC 20005

(800) 221-4602

International Rett Syndrome Foundation

Provides information and support for families affected by Rett Syndrome, a neurodevelopmental disorder.

Services: Disease/Disability Information, Nongovernmental Agency Departments, Research Funds

4600 Devitt Dr

Cincinnati, OH 45246

(800) 818-7388

Sudden Arrhythmia Death Syndromes Foundation

Provides information and support for people who are genetically predisposed to sudden cardiac death due to heart rhythm abnormalities (Sudden Arrhythmia Death Syndromes).

Services: Disease/Disability Information, Nongovernmental Agency Departments, Patient to Patient Networking, Physician Referral Services

4527 S 2300 E

Ste 104

Salt Lake City, UT 84117

(801) 948-0654

Alport Syndrome Foundation, Inc

Provides information about Alport Syndrome, a rare kidney disease.

Services: Board/Committee Member Volunteer Opportunities, Communications/Marketing Volunteer Opportunities, Computer/Internet Services Volunteer Opportunities, Disease/Disability Information, Fundraising Volunteer Opportunities, Medical and Health Sciences Research, Nongovernmental Agency Departments, Workshops/Symposiums

PO Box 4130

Scottsdale, AZ 85261

(480) 800-3510

Cornelia de Lange Syndrome Foundation, Inc

Provides information about Cornelia de Lange Syndrome, a genetic disorder.

Services: Disease/Disability Information, Nongovernmental Agency Departments, Patient to Patient Networking, Workshops/Symposiums

30 Tower Ln

Ste 400

Avon, CT 06001

(800) 753-2357

Turner Syndrome Foundation, Inc

Provides information and support for people with Turner Syndrome, a disorder of the endocrine system.

Services: Disease/Disability Information, Event Coordination Volunteer Opportunities, Nongovernmental Agency Departments

1 Bethany Rd

Bldg 1 Ste 5

Hazlet, NJ 07730

(800) 594-4585

FASD United

Provides information and support to people living with Fetal Alcohol Spectrum Disorders (FASD) and other preventable intellectual disabilities.

Services: Disease/Disability Information, Nongovernmental Agency Departments, Subject Specific Public Awareness/Education

Confidential location

Mc Lean, VA 22101

(202) 785-4585

GBS/CIDP Foundation International

Provides information and support to people with Guillain-Barre Syndrome, Chronic Inflammatory Demyelinating Polyneuropathy, and other disorders of the peripheral nerves.

Services: Disease/Disability Information, Nongovernmental Agency Departments

375 E Elm St

Ste 101

Conshohocken, PA 19428

(866) 224-3301

Solve ME/CFS Initiative

Provides information about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and other neuroimmune diseases such as Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS), Epstein-Barr Virus, Post-Viral Fatigue Syndrome (PVFS), and Long Covid.

Services: Disease/Disability Information, Medical and Health Sciences Research, Nongovernmental Agency Departments

Confidential location

Glendale, CA 91206

(704) 364-0016

Viewing 1-10 of 18 results (listed by best match)

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