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Full Resource Name:
National Organization for Rare Disorders
Address
55 Kenosia Ave
Danbury, CT 06810-7326
(800) 999-6673
AKA:
NORD
Eligibility:
No restrictions
Intake Process:
Call, email, visit website, or write
Description:
Provides information and publishes reports related to rare (orphan) diseases. Includes a description, the symptoms, causes, and standard and investigational treatments. Also provides information about clinical and research studies. Website provides links to other resources.
Hours:
Mon-Thu 8:30am-7pm, Fri 8:30am-6pm Eastern Time
Program Fees:
None for information; annual membership dues
Languages:
English, Spanish
Handicap Accessible?
Yes
Address Listings
Mailing
55 Kenosia Ave
Danbury, CT 06810-7326
Physical (Primary)
55 Kenosia Ave
Danbury, CT 06810-7326
Contacts
Peter Saltonstall
Alicia Lawrence
Patient Services Case Manager
Phone Numbers
Toll-Free: 800-999-NORD
(800) 999-6673
Toll-Free Spanish
(844) 259-7178
Date of Official Change:
December 1, 2023